|Dad and Edmond getting ready for the swallow study|
|Edmond working on his tactile skills and|
vision skills while watching Baby Einstein DVD
|Scary, Erythema Multiforme... benadryl helped.|
Last Thursday Edmond woke up with a bad rash all over his body, looking like hives. I took him to the pediatrician that morning and they said it's "erythema multiforme"... a rash that develops when the body if fighting an infection or virus, or it could be caused as a reaction to medication. Here is a picture of part of his body with it. Since he has not had any new medication, I can only assume it was a cold virus that manifested on his body like this. Doctor said other kids might have the virus, but not have any skin issues. We gave him benydryl and they began to clear within minutes. Poor bubba, he was also running an high fever later that day and his seizures did increase at the peak of the fever at 104.0, at that point I threw him in a cold bath and got the fever down. It's just more intense when normal kid stuff happens, but we got through it.
In the seizure arena, we had no seizures when we started ONFI, after about 3-4 weeks we were seeing 4-5 a day, and now it's about 2-3 a day, very short, less than 2 minutes, and they are non-convulsive, so he stiffens up and tightens as if he is trying to get into a ball position.
Just wanted to share some news on the rest of us. Recently the Lord spoke to me about some things in my life and in general reminded me that He loves me and sees me, that's seems so simple, but when it's the God who created the heaven and earth and is in charge of everything, it's super comforting... if you want to know more about how I heard God's voice... just ask me, and you know I will sure tell you :) As a result of this encounter with the Lord, doors opened for me to join a women's bible study at The Bridge (the church we attend), and I was asked to lead worship with my guitar before each study, which I secretly love to lead songs and worship in small group settings, so this has been a good thing for me to be a part of . The study has been extremely encouraging as well, I was even surprised at how much I have enjoyed it.
Adonis has also felt it on his heart to join a 5 week intensive discipleship Bible study called OSL, Operation Solid Lives. He's been jumping into that this week, I can tell it's a really challenging study so I'm really proud of him for undertaking it with everything we have going on with the kids, but I know it's important for us to be actively serving and learning about who God is during this time... if we don't, we will be clinging to other things to help us cope with our son.... and "all other ground is sinking sand".... so we really need to endeavor to stand on Christ and His word to us as He leads us day by day, sometimes hour by hour.
Our amazing Eden has been doing so well with potty training this week, she's been ready for some time to start, but mommy wasn't ready to do it until last week. I tried a few times here and there but I got too stressed out so I took a long break from it. I started with her last Wednesday, she had 3 accidents that day. On Friday she had one accident and went potty on her own without any prompting on her little potty we have for her. ON Saturday she went number 2 on her own without any prompting and by Monday she was taking down her pants on her own and pottying throughout the day... so I'm so proud of her, she's doing so great so quickly, Thank the Lord. I give her jelly beans when she does a good job, so I think she should have a sign "Will potty for jelly beans," because I think she is trying to potty more than she actually should.... but hey, I'm not complaining. I know this may be a little too descriptive for some of you but if you've ever potty trained a kid, you know how good it feels when they finally "get it!" Thanks for reading about us, please continue to pray for us... with tears. We send our love to all of you who pray for Edmond and support our family. You mean so much to us.
May God keep you in his grip,
May God keep you in his grip,
|Edmond practicing sitting up.|
|Mommy and Eden|
|The most precious hour of the day... nap time!|
|Our too handsome boy.|